Overseas Organisations

 

Overseas organisations for specific conditions and rare disorders.

Australia
Association of Genetic Support of Australasia (AGSA)
Web: http://www.agsa-geneticsupport.org.au

Canada
Canadian Organization for Rare Disorders
Web: http://www.cord.ca

New Zealand
Parent to Parent New Zealand
Web: http://www.parent2parent.org.nz

EUROPE

European Organization for Rare Disorders
Web: http://www.eurordis.org

France
Alliance Maladies Rares
Web: http://www.alliance-maladies-rares.org

Germany
Bundesarbeitsgemeinschaft Hilfe für Behinderte e.V.
Web: http://www.bagh.de

Denmark
KMS
Web: http://www.kms-danmark.dk

Netherlands
Vereniging Samenwerkende Ouder- en Patiëntenorganisaties
Web: http://www.vsop.nl

Norway
Senter for Sjeldne Funksjonshemningler
Web: http://www.frambu.no

USA

Birth Defect Research for Children
Web: http://www.birthdefects.org

National Organization for Rare Disorders (NORD)
Web: http://www.rarediseases.org

MUMS National Parent-to-Parent Network
Web: http://www.netnet.net/mums

Self-Help Clearinghouses
Web: http://www.mentalhelp.net/selfhelp/selfhelp.php?id=859

 Posted by at 8:12 pm